Longwood Foundation funds $100K multi-year breast cancer quality of life study
By Kelli Steele

Updated Thursday, January 12, 2017 - 1:57am

The Delaware Breast Cancer Coalition is pleased to announce the receipt of a $100,000 capacity building grant from the Longwood Foundation to pursue a multi-year Quality of Life study, expansion of a database, and a pilot project for a future study relate
The Delaware Breast Cancer Coalition is pleased to announce the receipt of a $100,000 capacity building grant from the Longwood Foundation to pursue a multi-year Quality of Life study, expansion of a database, and a pilot project for a future study related to programing to underserved populations. The study will investigate the relationship between social support, education programs and other findings in enhancing adaptation to cancer, specifically in reducing cancer related worry and will be the agency’s first scientific study in the field of research.



The purpose of the Quality of Life Study is to learn how and to what extent the range of programming and activities offered by DBCC is having an impact on women and men who have been diagnosed with breast cancer. The study utilizes a valid, reliable, widely used measure called “FACIT” which was adopted in 1997. The FACT-B (breast cancer) tool is a 37-item “compilation of general questions divided into four primary QOL domains: Physical well-being, social/family well-being, emotional well-being, and functional well-being.” DBCC has been granted a license by FACIT to use the tool in both English and Spanish, and as a hard copy and online survey. The study has been approved by HumRRO Institutional Review Board (IRB), based in Virginia.

The questionnaire and data will be administered and evaluated by Barbara Goldberg & Associates, LLC (BGA) over a three year time period. Barbara Goldberg & Associates, LLC (BGA) is a 35-year-old, Delaware based consulting firm specializing in research and evaluation. The findings of this study will position the Coalition to further its research on breast cancer programing in underserved populations. Additionally, research findings will be disseminated to larger audiences including conferences, op ed pieces and publications.

If you have been recently diagnosed with breast cancer and are interested in finding out more, please contact Cathy Holloway at 302-468-4814.



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